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Feb. 18th, 2008 10:36 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
sailorhathorI've got an appointment with the Immunologist tomorrow. My general practitioner doctor gave me a corticosteroid pack on Friday, and I paid close attention to how it affected me this time around. Corticosteroids suppress your immune system's response to allergens, among other things. You take the pills over six days, and take one less pill each day until you're done. The first three days, I felt fucking great. I mean, better than I remember feeling for over a year. I had SO much energy. I never have any energy anymore. I'm always exhausted and falling asleep, even if I get plenty of it. My skin stopped itching almost completely. My hands hardly hurt at all. My head got really cleared up in that time. It improved my attitude and spirits considerably. Now that I'm on the fifth day, I'm feeling shitty again. Tired and sleepy, itching a lot (esp my face and nose), head is getting stuffy again, hands hurt more than usual. I'm pretty much convinced that I have some type of autoimmune disease. I already know my skin, eye (allergies), and sinus problems are atopic syndrome, which is an autoimmune condition. (Autoimmune means your immune system is too hypersensitive and actually winds up attacking healthy tissue.) I'm sure the hypersensitivity to perfumes is related to the same condition.
I'm really hoping there's something this new doctor can do to make me feel great again. I've really missed feeling as good as I did this weekend. All I wanted to do was write and create and just be happy, and I wasn't sleepy at 9pm like I am tonight. I know this is a tricky thing because you can't just suppress a person's immune system all the time; I wouldn't be able to fight off infections. But they are able to help people with lupus, so whatever I have, can't they help me? God I hope so. My symptoms are getting worse every day.
I'm nervous that the doctor is going to tell me that I'm being stupid and that there's nothing wrong with me. I know he couldn't really say that because my symptoms speak for themselves, but I can't help but feel that way after years of my siblings treating me like I was just being lazy when I felt bad so much of the time. Now that I'm so close to finding out why, I'm afraid it'll all be yanked out from under me, and I'll just have to go back to feeling shitty every day. I'm really hopeful that the doc will have some ideas, though.
I'm almost done with a new chapter of "Lacerated Sky," yaaaay!
I'm really hoping there's something this new doctor can do to make me feel great again. I've really missed feeling as good as I did this weekend. All I wanted to do was write and create and just be happy, and I wasn't sleepy at 9pm like I am tonight. I know this is a tricky thing because you can't just suppress a person's immune system all the time; I wouldn't be able to fight off infections. But they are able to help people with lupus, so whatever I have, can't they help me? God I hope so. My symptoms are getting worse every day.
I'm nervous that the doctor is going to tell me that I'm being stupid and that there's nothing wrong with me. I know he couldn't really say that because my symptoms speak for themselves, but I can't help but feel that way after years of my siblings treating me like I was just being lazy when I felt bad so much of the time. Now that I'm so close to finding out why, I'm afraid it'll all be yanked out from under me, and I'll just have to go back to feeling shitty every day. I'm really hopeful that the doc will have some ideas, though.
I'm almost done with a new chapter of "Lacerated Sky," yaaaay!
